Data and research

Information on all newly diagnosed cases of notifiable STIs and BBVs is collected on standard forms which include questions which ask about the probable mode of transmission, country of birth, and Indigenous status.

This information is forwarded to state/territory health departments – without the names of the people who have been diagnosed, just a code for each case. This is known as surveillance – the monitoring of notifiable disease data.

Surveillance data are sent to the Kirby Institute, which produces annual surveillance reports, including Blood-borne viral and sexually transmitted infections in Aboriginal and Torres Strait Islander people: Annual Surveillance Report.  These annual reports show the number of new diagnoses in the previous calendar year, statistics on modes of transmission (e.g., anal sex, heterosexual sex, sharing of injecting drug equipment), and rates of STIs and BBVs. Access the 2017 surveillance report here.

For an overview of the 2017 data on HIV rates among Aboriginal & Torres Strait Islander people and a discussion of the growing divergence between rates for Indigenous and non-Indigenous Australians, see HIV and Aboriginal & Torres Strait Islander Communities in 2017, a booklet produced by the South Australian Health and Medical Research Institute.

Government decisions on investment in STI and BBV prevention, treatment and care are made on the basis of surveillance data, along with findings from research studies and consultations with community advocates.

Multijurisdictional Syphilis Outbreak Working Group communiques

The Multijurisdictional Syphilis Outbreak Group (MJSO) produces communiques which provide updates on epidemiological data for the syphilis outbreak, and the Group’s activities.

STI and BBV research

Research provides the evidence base for developing prevention and treatment initiatives targeting particular communities. Research is also important for monitoring and evaluating programs. Australian research centres which focus on STI and BBV prevention among Aboriginal and Torres Strait Islander communities include:

Research Publications

Here are links to a selection of research publications relevant to STI and BBV prevention, testing and treatment in remote Aboriginal and Torres Strait Islander communities.

Incidence and prevalence of STIs/BBVs among Aboriginal people

HIV incidence in Indigenous and non-Indigenous populations in Australia: a population-level observational study. Ward J, McManus H, McGregor S, Hawke K, Giele C, Su J, McDonald A, Guy R, Donovan B, Kaldor JM. Lancet HIV. 2018 Sep;5(9):PE506-E514. doi: 10.1016/S2352-3018(18)30135-8.

Prevalence of chlamydia, gonorrhoea, syphilis and trichomonas in Aboriginal and Torres Strait Islander Australians: a systematic review and meta-analysis. Graham S, Smith LW, Fairley CK, Hocking J. Sex Health. 2016 Apr;13(2):99-113. doi: 10.1071/SH15171.

Prevalence and Correlates of a Diagnosis of Sexually Transmitted Infection Among Young Aboriginal and Torres Strait Islander People: A National Survey. Ward J, Wand H, Bryant J, Delaney-Thiele D, Worth H, Pitts M, Byron K, Moore, Donovan B, Kaldor JM. Sex Transm Dis. 2016 Mar;43(3):177-84. doi: 10.1097/OLQ.0000000000000417.

Incidence of curable sexually transmissible infections among adolescents and young adults in remote Australian Aboriginal communities: analysis of longitudinal clinical service data. Silver BJ, Guy RJ, Wand H, Ward J, Rumbold AR, Fairley CK, Donovan B, Maher L, Dyda A, Garton L, Hengel B, Knox J, McGregor S, Taylor-Thomson D, Kaldor JM; STRIVE investigators. Sex Transm Infect. 2015 Mar;91(2):135-41. doi: 10.1136/sextrans-2014-051617. Epub 2014 Nov 4.

Infectious and congenital syphilis notifications associated with an ongoing outbreak in northern Australia. Bright A, Dups J. Commun Dis Intell Q Rep. 2015;40(1):E7–E10.

Population movement can sustain high STI prevalence in remote Australian Indigenous communities. Hui B, Gray R, Wilson D,  Ward J, Smith A,  Philip D, Hocking J, Regan D. BMC Inf Dis. 2013; 13: 188. doi: 10.1186/1471-2334-13-188

HIV – risk of concentrated epidemic

Priorities for preventing a concentrated HIV epidemic among Aboriginal and Torres Strait Islander Australians. Ward J, Hawke K, Guy R. Med J Aust. 2018;209(1):56. doi: 10.5694/mja17.01071

Low HIV testing rates among people with a sexually transmissible infection diagnosis in remote Aboriginal communities. Ward JS, Dyda A, McGregor S, Rumbold A, Garton L, Donovan B, Kaldor JM, Guy RJ. Med J Aust. 2016 Aug 15;205(4):168-71.

HIV in Saskatchewan merits urgent response. Vogel L. Can Med Assoc J. 2015;187(11):793–794.

So Far, So Good: Maintenance of Prevention is required to Stem HIV Incidence in Aboriginal and Torres Strait Islander Communities in Australia. Ward J, Costello M, Willis J, Saunders M, Shannon C. AIDS Educ Prev. 2014 Jun;26(3):267-79.

Risk behaviours / social determinants

Low education levels are associated with early age of sexual debut, drug use and risky sexual behaviours among young Indigenous Australians. Wand H, Bryant J, Worth H, Pitts M, Kaldor JM, Delaney-Thiele D, Ward J. Sex Health. 2017 Nov;15(1):68-75. doi: 10.1071/SH17039

Sexual agency, risk and vulnerability: a scoping review of young Indigenous Australians’ sexual health. Journal of Youth Studies. Bell S, Aggleton P, Ward J, Maher L. 2017;20(9):1208-24. doi: 10.1080/13676261.2017.1317088.

Individual and population level impacts of illicit drug use, sexual risk behaviours on sexually transmitted infections among young Aboriginal and Torres Strait Islander people: results from the GOANNA survey. Wand H, Ward J, Bryant J, Delaney-Thiele D, Worth H, Pitts M, Kaldor JM. BMC Public Health. 2016 Jul 19;16:600. doi: 10.1186/s12889-016-3195-6.

Sexual behaviour, drug use and health service use by young Noongar people in Western Australia: a snapshot. Williams R, Lawrence C, Wilkes E, Shipp M, Henry B, Eades S, et al. Sexual Health. 12(3):188-193 doi: 10.1071/SH14038

Illicit and injecting drug use among Australian indigenous young people in urban, regional and remote Australia. Bryant J, Ward J, Wand H, , Bamblett A, Waples-Crowe P, Betts S, Coburn T, Delaney-Thiele D, Worth H, Kaldor J, Pitts M. Drug Alcohol Rev. 2016 Jul;35(4):447-55. doi: 10.1111/dar.12320. Epub 2015 Sep 15.

Methods of a national survey of young Aboriginal and Torres Strait Islander people regarding sexually transmissible infections and bloodborne viruses. Ward J, Bryant J, Wand H, Kaldor J, Delaney-Thiele D, Worth H, Betts S, Waples-Crowe P, Cairnduff S, Coburn T, Donovan B, Pitts M. Aust N Z J Public Health. 2016 Apr;40 Suppl 1:S96-101. doi: 10.1111/1753-6405.12427. Epub 2015 Aug 10.

Sexual risk and healthcare seeking behaviour in young Aboriginal and Torres Strait Islander people in North Queensland. Scott R, Foster R, Oliver LN, Olsen A, Mooney-Somers J, Mathers B, Micallef JM, Kaldor J, Maher L. Sex Health. 2015 Jun;12(3):194-9. doi: 10.1071/SH14092.

Sexual Health and relationships in young Aboriginal and Torres Strait Islander people: Results from the first national study assessing knowledge, risk practices and health service use in relation to sexually transmitted infections and blood borne viruses. Ward J, Bryant J, Wand H, Pitts M, Smith A, Delaney-Thiele D, et al. Alice Springs: Baker IDI Heart & Diabetes Institute, 2014.

Testing and treatment – service issues

Patient staffing and health centre factors associated with annual testing for sexually transmissible infections in remote primary health centres. Hengel B, Wand H, Ward J, Rumbold A, Garton L, Taylor-Thomson D, Silver B, McGregor S, Dyda A, Mein J, Knox J, Maher L, Kaldor J, Guy R. Sex Health. 2017 Jun;14(3):274-281. doi: 10.1071/SH16123.

Wide variation in sexually transmitted infection testing and counselling at Aboriginal primary health care centres in Australia: analysis of longitudinal continuous quality improvement data. Nattabi B, Matthews V, Bailie J, Rumbold A, Scrimgeour D, Schierhout G, Ward J, Guy R, Kaldor J, Thompson SC, Bailie R. BMC Infect Dis. 2017 Feb 15;17(1):148. doi: 10.1186/s12879-017-2241-z.

Development of a Risk Algorithm to Better Target STI Testing and Treatment Among Australian Aboriginal and Torres Strait Islander People. Wand H, Bryant J, Pitts M, Delaney-Thiele D, Kaldor JM, Worth H, Ward J. Arch Sex Behav. 2017 Oct;46(7):2145-2156. doi: 10.1007/s10508-017-0958-9. Epub 2017 May 26.

Trends in chlamydia and gonorrhoea testing and positivity in Western Australian Aboriginal and non-Aboriginal women 2001-2013: a population-based cohort study. Reekie J, Donovan B, Guy R, Hocking JS, Kaldor JM, Mak DB, Pearson S, Preen D, Wand H, Ward J, Liu B. Sex Health. 2017 Nov;14(6):574-580. doi: 10.1071/SH16207.

Why are men less tested for sexually transmitted infections in remote Australian Indigenous communities? A mixed-methods study. Su JY, Belton S, Ryder N. Cult Health Sex. 2016 Oct;18(10):1150-64. doi: 10.1080/13691058.2016.1175028. Epub 2016 May 4.

Low HIV testing rates among people with a sexually transmissible infection diagnosis in remote Aboriginal communities. Ward JS, Dyda A, McGregor S, Rumbold A, Garton L, Donovan B, Kaldor JM, Guy RJ. Med J Aust. 2016 Aug 15;205(4):168-71.

Addressing structural challenges for the sexual health and well-being of Indigenous women in Australia. Arabena K. Sex Transm Infect. 2016 Mar;92(2):88-9. doi: 10.1136/sextrans-2015-052412.

Quality improvement interventions for improving the detection and management of curable sexually transmitted infections in primary care (Protocol). Nattabi B, Gudka S, Ward J, Rumbold A. Cochrane Database of Systematic Reviews 2016, Issue 10. Art. No.: CD012374. DOI: 10.1002/14651858.CD012374.

Early presentation of symptomatic individuals is critical in controlling sexually transmissible infections. Fairley CK, Chow EP, Hocking JS. Sex Health. 2015 Jun;12(3):181-2. doi: 10.1071/SH15036.

A sexual health quality improvement program (SHIMMER) triples chlamydia and gonorrhoea testing rates among young people attending Aboriginal primary health care services in Australia. Graham S, Guy RJ, Wand HC, Kaldor JM, Donovan B, Knox J, McCowen D, Bullen P, Booker J, O’Brien C, Garrett K, Ward JS. BMC Infect Dis. 2015 Sep 2;15:370. doi: 10.1186/s12879-015-1107-5.

Incidence and predictors of annual chlamydia testing among 15-29 year olds attending Aboriginal primary health care services in New South Wales, Australia. Graham S, Guy RJ, Ward JS, Kaldor J, Donovan B, Knox J, McCowen D, Bullen P, Booker J, O’Brien C, Garrett K, Wand HC. BMC Health Serv Res. 2015 Sep 30;15:437. doi: 10.1186/s12913-015-1116-5.

Attendance patterns and chlamydia and gonorrhoea testing among young people in Aboriginal primary health centres in New South Wales, Australia. Graham S, Wand HC, Ward JS, Knox J, McCowen D, Bullen P, Booker J, O’Brien C, Garrett K, Donovan B, Kaldor J, Guy RJ. Sex Health. 2015 Oct;12(5):445-52. doi: 10.1071/SH15007.

Reasons for delays in treatment of bacterial sexually transmissible infections in remote Aboriginal communities in Australia: a qualitative study of health centre staff. Hengel B, Maher L, Garton L, Ward J, Rumbold A, Taylor-Thomson D, Silver B, McGregor S, Dyda A, Knox J, Kaldor J, Guy R, Strive Investigators OB. Sex Health. 2015 Aug;12(4):341-7. doi: 10.1071/SH14240.

Barriers and facilitators of sexually transmissible infection testing in remote Australian Aboriginal communities: results from the Sexually Transmitted Infections in Remote Communities, Improved and Enhanced Primary Health Care (STRIVE) Study. Hengel B, Guy R, Garton L, Ward J, Rumbold A, Taylor-Thomson D, Silver B, McGregor S, Dyda A, Knox J, Kaldor J, Maher L. Sex Health. 2015 Mar;12(1):4-12. doi: 10.1071/SH14080.

Factors affecting the quality of antenatal care provided to remote dwelling Aboriginal women in northern Australia. Bar-Zeev S, Barclay L, Kruske S, Kildea S. Midwifery. 2014 Mar;30(3):289-96. doi: 10.1016/j.midw.2013.04.009.

‘Closing the Gap’: How maternity services can contribute to reducing poor maternal infant health outcomes for Aboriginal and Torres Strait Islander women. Kildea S, Kruske S, Barclay L, Tracy S. Rural and Remote Health. 2010;10:1383.

Census Data

The Australian Bureau of Statistics’ (ABS) 2016 Data Summary provides a snapshot  of 2016 census data for Aboriginal and Torres Strait Islander respondents, including on state/territory of residence.

The map graphic below, drawn from 2006 ABS data, shows population density for discrete Aboriginal and Torres Strait Islander communities.

Discrete Indigenous Communities by Usual Population – ABS, 2006 census data